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Mercies in Disguise: A Story of Hope, a Family's Genetic Destiny, and the Science That Rescued Them (Hardcover)

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April 2017 Indie Next List


“This is the tale of a family that has shown remarkable strength in the face of adversity. Kolata does a wonderful job showing us the Baxleys' joy and heartbreak by chronicling their decisions, their doubts, their fears; the decision to be genetically tested for a devastating illness seemed agonizing and the consequences of living with the outcome even more so. The strength shown by Amanda and the Baxley family made this one of the most amazing stories that I have ever had the privilege to read. I thank them for sharing their story with me; it was truly inspirational.”
— Austin Wheeling-Goodson (W), Burry Bookstore, Hartsville, SC

Description


The phone rings. The doctor from California is on the line. Are you ready Amanda? The two people Amanda Baxley loves the most had begged her not to be tested at least, not now. But she had to find out.

If your family carried a mutated gene that foretold a brutal illness and you were offered the chance to find out if you d inherited it, would you do it? Would you walk toward the problem, bravely accepting whatever answer came your way? Or would you avoid the potential bad news as long as possible?

In Mercies in Disguise, acclaimed New York Times science reporter and bestselling author Gina Kolata tells the story of the Baxleys, an almost archetypal family in a small town in South Carolina. A proud and determined clan, many of them doctors, they are struck one by one with an inscrutable illness. They finally discover the cause of the disease after a remarkable sequence of events that many saw as providential. Meanwhile, science, progressing for a half a century along a parallel track, had handed the Baxleys a resolution not a cure, but a blood test that would reveal who had the gene for the disease and who did not. And science would offer another dilemma fertility specialists had created a way to spare the children through an expensive process.

A work of narrative nonfiction in the tradition of the The Immortal Life of Henrietta Lacks, Mercies in Disguise is the story of a family that took matters into its own hands when the medical world abandoned them. It's a story of a family that had to deal with unspeakable tragedy and yet did not allow it to tear them apart. And it is the story of a young woman Amanda Baxley who faced the future head on, determined to find a way to disrupt her family's destiny.

About the Author


GINA KOLATA (M.A.) is a writer and medical reporter for The New York Times. She has previously written several books, including Flu, and edited collections of popular science writing. Ms. Kolata lives with her husband in Princeton, New Jersey.
Product Details
ISBN: 9781250064349
ISBN-10: 1250064341
Publisher: St. Martin's Press
Publication Date: March 21st, 2017
Pages: 272
Language: English

Third Monday in May

 

From the publisher:

"In this richly imaginative debut novel, the first running of the Kentucky Derby serves as the backdrop for a story of what might have been had Abraham Lincoln survived his assassination and lived to retire with Mary to Springfield.  Derby historian Ross R. Moore provides an accurate account of the origins of the famous race, while creating a detailed and entirely plausible world through which the Lincoln's journey to Louisville to meet old friends and to face another deadly threat.  Part horse racing saga, part travelogue, part historical fantasy, part suspense thriller, chock full of sly bits of "stealth history" befitting its educator author, and peopled with memorable characters both real and imaginary, the result is an entertaining and engaging yarn and rewarding read."

Ross R. Moore is an educator, storyteller, and singer-songwriter living in San Diego.  A native of Kentucky where he attended Murray State University and the University of Louisville, he was for several years a museum educator at the Kentucky Derby Museum, sharing the history of the race with visitors. Now he brings this story to a wider audience, drawing upon his knowledge of Derby lore to form the backdrop of this, his first novel.

New Novel about Crawfish Bottom

Book cover: Concerning the Matter of the King of Craw a story by Ron Rhody

Local author, Ron Rhody has written a new novel "Concerning the Matter of the King of Craw" about the infamous John Fallis.

Ron is author of the "Theo" books about Frankfort.

Author Ron Rhody and store owner Lizz Taylor

Ron Rhody was in the store to sign copies of his new book recently.

So we have a limited quantity of signed copies of King of Craw that would make great presents.